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Need Help - Hematology won't do testing
Blood Cancers & Disorders | Last Active: Jan 30, 2023 | Replies (77)Comment receiving replies
@wiggins32: Physicians are very careful not to tread on the egos of others practicing their specialty in their offices. When MGUS was diagnosed I did not receive a referral to a hematologist, and just picked one at random. My mistake! Hemo #1 seemed to say “good bye” before he even said “hello.” An uncaring cold fish. I stopped seeing him and decided to go to Mayo to learn about my new condition. A couple of years passed and I went to others before I returned with a referral to the same large local hemo/oncologist office with a referral to one I now see. For you it will be different because you’re experiencing greater urgency. Then came a little dance of formalities. First Hemo#1 had to be contacted and his permission granted to see a different one. Accomplished. I’m relieved. By the way, it was my Hemo who encouraged me to go to my present internist after the first one retired.
Suggestion: can you maybe research the different local hematologists online? Google them? I’m wondering if finding a different internist will help. Maybe. Let’s hope so!
Sometimes progress does not evolve in a straight line.
Wishing you all the best in your persistence!
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@raye. Oh my goodness. I am so relieved to hear that I am not alone with the changing doctor issue! It's so political, and I'm just trying to get better; not be in medical politics 🙄. To your point of "new" internist, I just got signed on with one and 1st appt is 12/27. Have heard great things about her, and I'm hopeful! I do have several symptoms of Celiac, and hope to be tested. Did you ever have foamy urine? Pancreatitis? Sudden weight gain? I've experienced warp speed advancement of osteoporosis in past 10 months (now in shoulders, wrists, and ankles). Peripheral neuropathy is constant in my feet and calves. I totally understand "progress not in a straight line". But I just turned 68, and this started at 63 yo. I had to retire bcuz of this. Now I worry that my life long bucket list of traveling may not happen. Other words, time is marching by and none of doctors seem to have any sense of urgency, and hemo is satisfied to treat IDA. I just asked her if I can get testing (other than gastro); bone marrow, etc. Anything? She says no and seems to think I'm a hypochondriac. But I've never had foamy urine until past 4 months, or painful neuropathy, and my right shoulder started drooping a lot since June. Soooo hopeful about my new internist! Fingers crossed.