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Need Help - Hematology won't do testing

Blood Cancers & Disorders | Last Active: Jan 30, 2023 | Replies (77)

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@bscham

Wiggins32 my celiac was actually found by accident. I was hospitalized for a DVT in my leg and a pulmonary embolism is both lungs. I think they were caused by the vaccine but that is another story.
When they did blood tests my hemoglobin was at 8 and very low iron so they did a endoscopy looking for bleeding. They found the villi in my small intestine was not absorbing any nutrients which happens with celiac. Then they did a blood test for celiac which was called Tissue
Transglutaminase Antibody IgA and it was positive. When I looked up celiac disease symptoms I found I had been dealing with a lot of them for years. However I never got really sick from eating gluten so it was never found.
You probably don’t have it but certainly something to check into.
I hope you can find answers. Good luck!

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Replies to "Wiggins32 my celiac was actually found by accident. I was hospitalized for a DVT in my..."

Hi bscham. I have just started with a new primary. She is an internist, and I got very lucky getting in since it's usually several months for new patients. Interesting about my IgA...it is quite low (26), and prior IgA tests (2x over past 4 yrs), it was low both times. She is ordering evaluation by an Immunologist, but they aren't easy to find. My immunoglobins are all off. Also, I have had 2 endoscopic procedures but have never been told the results. I am gluten sensitive but ulcerative colitis is also possibility. 4 yrs with no answers. I have very bad ulcerative skin rashes for past 2 yrs. too. My eyes, tongue, skin, joints, muscles, etc., are all affected. I'm really hoping for answers + treatment soon. Thank you!