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Need Help - Hematology won't do testing

Blood Cancers & Disorders | Last Active: Jan 30, 2023 | Replies (77)

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@wiggins32

@raye...thank you for the suggestions. My insurance is not the issue; rather, it is the hematology provider of 4+ yrs. They are constantly telling me that I have an iron absorption issue. And treat me with iron infusions. I want to at least know what type of IDA I have, and why it's getting worse. I have tried switching twice and ended up empty handed...docs are mega territorial in my city, it seems. I refuse to give up. I've just started with a new Internist and hopeful she will have some influence in improving my health. Thank you.

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Replies to "@raye...thank you for the suggestions. My insurance is not the issue; rather, it is the hematology..."

@wiggins32: Physicians are very careful not to tread on the egos of others practicing their specialty in their offices. When MGUS was diagnosed I did not receive a referral to a hematologist, and just picked one at random. My mistake! Hemo #1 seemed to say “good bye” before he even said “hello.” An uncaring cold fish. I stopped seeing him and decided to go to Mayo to learn about my new condition. A couple of years passed and I went to others before I returned with a referral to the same large local hemo/oncologist office with a referral to one I now see. For you it will be different because you’re experiencing greater urgency. Then came a little dance of formalities. First Hemo#1 had to be contacted and his permission granted to see a different one. Accomplished. I’m relieved. By the way, it was my Hemo who encouraged me to go to my present internist after the first one retired.

Suggestion: can you maybe research the different local hematologists online? Google them? I’m wondering if finding a different internist will help. Maybe. Let’s hope so!
Sometimes progress does not evolve in a straight line.
Wishing you all the best in your persistence!