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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: Aug 11, 2023 | Replies (76)
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@renee12345

My whole life I’ve had normal platelets til now. Found out they are 130,000. My md wants to wait 6-8 weeks to retest. This seems like a long time . I also have lupus anticoagulant aka antiphospholipid antibody; but no new symptoms re low platelets. Been on coumadin 35 years.
Anyone have similar problem with low platelet count and follow up?
Thank you in advance.

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Replies to "My whole life I’ve had normal platelets til now. Found out they are 130,000. My md..."
Colleen Young, Connect Director | @colleenyoung | Nov 29, 2022

Welcome @renee12345.
You might also be interested in this related discussion:
– What can I expect with Antiphospholipid Syndrome (APS) https://connect.mayoclinic.org/discussion/aps/

Renee, it sounds like you're not taking any new medications. Have you experienced any recent illnesses or other change that might help explain the cause? What has been ruled out?

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hlmcneely | @hlmcneely | Nov 29, 2022

Hi renee12345

I went from normal platelets and high monocytes to low platelets in a couple of years. Had a bone marrow biopsy but at the time they were clueless. My research always pointed to lupus or leukemia. Last year a lot of things changed and went low platelets.
When they dropped to 64 I had a second bone marrow biopsy. With better technologies or better doctors ( no slam there ) I was diagnostic with MDS. I am on a wait and watch with blood work now at every 3 months. There’s a lot of good info here and great people to help you. Keep us informed.

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