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Low Platelets: Diagnosis to be confirmed
Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)Comment receiving replies
My whole life I’ve had normal platelets til now. Found out they are 130,000. My md wants to wait 6-8 weeks to retest. This seems like a long time . I also have lupus anticoagulant aka antiphospholipid antibody; but no new symptoms re low platelets. Been on coumadin 35 years.
Anyone have similar problem with low platelet count and follow up?
Thank you in advance.
Replies to "My whole life I’ve had normal platelets til now. Found out they are 130,000. My md..."
Hi renee12345
I went from normal platelets and high monocytes to low platelets in a couple of years. Had a bone marrow biopsy but at the time they were clueless. My research always pointed to lupus or leukemia. Last year a lot of things changed and went low platelets.
When they dropped to 64 I had a second bone marrow biopsy. With better technologies or better doctors ( no slam there ) I was diagnostic with MDS. I am on a wait and watch with blood work now at every 3 months. There’s a lot of good info here and great people to help you. Keep us informed.
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Welcome @renee12345.
You might also be interested in this related discussion:
– What can I expect with Antiphospholipid Syndrome (APS) https://connect.mayoclinic.org/discussion/aps/
Renee, it sounds like you're not taking any new medications. Have you experienced any recent illnesses or other change that might help explain the cause? What has been ruled out?