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Trismus (lock jaw) after Head & Neck cancer treatment: What helps?
Head & Neck Cancer | Last Active: Mar 1, 2023 | Replies (47)Comment receiving replies
Thank you for sharing. For me this is a huge life altering situation and I am surprised at how few people acknowledge they suffer from this. I am also frankly shocked at how lackadaisical the many medical consultants I have dealt with have been. With that off my chest, I did get a Therabite device. It seemed to help open my mouth some but after I removed it my mouth reverted back so I quit using it. Since you mentioned it I see they recommend it be used several times daily which is not what I did so am resuming use of it. Thank you for your encouragement. I wish you well. Please keep in touch if you make any progress and I will do the same.
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Yes I use the Therabit 5 times for 30 seconds, 5 times a day. I had my daughter set reminders on my phone for me or I'm sure to forget.
I certainly agree that others either haven't had our jaw problems or it wasn't as bad.
I did do research though and if the Therabite doesn't work out there is a surgery that has a high percentage of success for trismus, doctor's did not even tell me about that option.
I dislike having a feeding tube but would probably have starved as right after the radiation treatments ended as I had some serious depression and lost a lot of weight. So am resigned to using it for now.
I hope things get better soon for you and yes will keep in touch.
Regards
Cheryl