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Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

Head & Neck Cancer | Last Active: Mar 1, 2023 | Replies (47)
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@hnc67

Hi RW, I wish I could say yes but I have had lockjaw for months and eat by tube too. Like you the exercises haven't worked but I have recently started using a Therabite system and it does seem to be very slowly helping, have you tried that? My speech therapist tells me I shouldn't expect to get a complete mouth opening but I am trying to stay positive. Good luck to you

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RW | @nbkod7b | Nov 28, 2022

Thank you for sharing. For me this is a huge life altering situation and I am surprised at how few people acknowledge they suffer from this. I am also frankly shocked at how lackadaisical the many medical consultants I have dealt with have been. With that off my chest, I did get a Therabite device. It seemed to help open my mouth some but after I removed it my mouth reverted back so I quit using it. Since you mentioned it I see they recommend it be used several times daily which is not what I did so am resuming use of it. Thank you for your encouragement. I wish you well. Please keep in touch if you make any progress and I will do the same.

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