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Squamous Cell Cancer of head and neck

Head & Neck Cancer | Last Active: Dec 3, 2022 | Replies (29)

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@blondiebabe1

Thank you so much for the kind words and jumping through this insurance Hoops is ridiculous one only one thing is holding me up to help her it is frustrating. Not to mention I am struggling with even though she is 41 she is hard to keep on track sometimes on the simplest task almost like her age is 41 but her brain is 12 and I'm sure that's part of her Mental Health I have just never known it to be to this degree so it seems as if the only one fighting for her life is me and to be brutally honest I am getting worn down by it like to the point if you're not going to fight why should I? Have you ever experienced that?

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Replies to "Thank you so much for the kind words and jumping through this insurance Hoops is ridiculous..."

Sadly No, I have a Family we're very close, but reach out to Groups, there are so many here, I can help you as much as I can just being there for you, but I'm honest, as why hide it, treatment is rough, can you handle it alone, if not call a Social Worker at your Hospital, mine was a God sent, till today, I feel so bad for you as well as her, so tomorrow a.m. call yes call a Social Worker, they will even help with getting her in to be seen..Make sure you see a Head & Neck Oncologist please....
Hugs ❤

I am 10 years out from Head and Neck SCC, with multiple surgeries for metastases. My husband also has cancer so I am caregiver as well as patient. The caregiver must keep herself healthy , including reducing mental stress, to keep from burning out. You cannot fix everything for her, and should accept that fact initially. You are going to help her, but you cannot do it all. Perhaps a therapist could help get her to understand the severity of her situation, so that she can take a bigger role in her own health care. Being strong and staying optimistic is important in dealing with cancer, so I hope you both can work as a team. Once you have a medical team, you won't feel so alone in this fight. Often a physician can get a referral started faster so I wonder if the diagnosing hospital would help to get things started in your area if requested. Sometimes an ER visit is needed to get the ball rolling for referral. If you have a referral center/teaching hospital nearby contacting their social workers might be helpful. The time frame is important, but more so if a highly aggressive cancer than one that is slow growing. I imagine you don't know anything about this tumor type yet. Good luck and be a vocal advocate for her health.