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Can anyone share their bone marrow transplant caregiver experience?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Dec 18, 2023 | Replies (51)
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@maguiregirl

I am all set up with the portal, and live about 40 miles from Mayo. My husband is going to be my primary care giver with a few wonderful friends chipping in along the way. We must have made 100 + trips back and forth so far in this last year. I actually was hospitalized there for 8 days (severe bone pain) in March 2022, and 23 days in Oct-Nov (when my immune system was so low and I had a fever). How long was your stay in the hospital when you had your transplant? Did you have any surprises you didn't expect?

Thanks for your reply, Debbie

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Replies to "I am all set up with the portal, and live about 40 miles from Mayo. My..."
Lori, Volunteer Mentor | @loribmt | Jan 16, 2023

Good morning, @maguiregirl I just wanted to check in to see how you’re doing post transplant. For some reason I never saw this reply and I’m ashamed I haven’t written sooner!

How are you feeling? Those first few weeks can be a real challenge with nausea and fatigue. But I promise it gets better! Let me know how you’re progressing and I promise to keep a hawk-eye out for you! Hugs!

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Lori, Volunteer Mentor | @loribmt | Jul 15, 2023

Hi Debbie @maguiregirl. It’s been well over 6 months since your bone marrow transplant. How have you been feeling…getting back to normal?

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