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@hello1234

@caretakermom 😊
I forget what your local nephrologist situation is...
do you have a knowledgeable local nephrologist that you like? I love my local nephrologist because he has so much experience with kidney transplant patients and the meds. Maybe you can ask your local nephrologist what his patients' experience has been with Sirolimus...would that help you to feel more confident?

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Replies to "@caretakermom 😊 I forget what your local nephrologist situation is... do you have a knowledgeable local..."

@hello1234, Mayo changed appointment back to an MD today. I was told who you get depends on availability so I hope there aren't anymore changes!
Our local neph is very difficult is get a hold of because he is in his office 1 or 2 days a week. He doesn't use email/patient portal to communicate to his many patients, uses telephone only! He is very experienced with transplant patients, among others, but defers CMV management/treatment to the transplant team.
Our appointment with Mayo is next week and will know for certain if transition to the new drug will occur. It's a good time to change meds because our Myfortic is due to be refilled literally in days!