Hi @hello1234, yes we are concerned about Sirolimus due to its possible side effects. I'm hoping that the PA will read Dr. Mour's clinical notes regarding the plan to switch to Sirolimus. After all, the purpose of this upcoming appointment is to (probably) transition to a new medication. Also, another MD may provide different insights into Sirolimus as it relates to hubby, and if both MDs agree on the switch would give reassurance that this is the right way to go.
Hubby was scheduled to see an MD and Mayo changed they called late Friday afternoon. I have yet to know the reason for the change. Perhaps it's because my hubby already saw an MD(8 month) about this and they're just waiting for 3 consecutive undetected CMV before switching, and they don't see a need for a MD for this occasion? I don't know for sure, just speculating.
I think time is of utmost important because I really don't want to wait around any longer if the best thing to do is to switch meds. If the next appmt is with a PA then so be it! What else can we do at this point?? Hope the PA is helpful and able to address questions/issues.