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I have JAK2 ET and MPN: Anyone else have these symptoms?

Blood Cancers & Disorders | Last Active: Jun 19 5:40am | Replies (63)
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@dancouclanel4

Yes, i'm dealing with JAK 2 mutation, had a biopsy which confirmed MDS/MPN syndrome. I take one 500 mg hydrea capsule on MWF ONLY to keep blood and platelets in balance. Get tried in early afternoon into evening.

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Replies to "Yes, i'm dealing with JAK 2 mutation, had a biopsy which confirmed MDS/MPN syndrome. I take..."
nohrt4me | @nohrt4me | Nov 26, 2022

What time of day do you take yr HU?

Asking bc I am CALR, but something about late afternoon plows me under! I have tried coffee, fruit, a hit of sugar, extra water, walk--but nothing works. Maybe a nap would, but then I fear I wouldn't sleep at night. Fatigue is not always severe, but when it is, I can hardly put words together.

Wondering if changing HU from bedtime to mornings would make a diff.

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