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@willows

I have lichen sclerosis which is an autoimmune disease affecting the genital area as well as some other areas like arms and legs. Recently developed a sore mouth no cured by antifungal mouthwash. My ENT asked me if I thought it could be related to my lichen sclerosis. I said I didn’t think so and he said well I do think so. He referred me to a mouth specialist at the university hospital and I am still waiting for an appointment. Relevant comments please.

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Replies to "I have lichen sclerosis which is an autoimmune disease affecting the genital area as well as..."

@willows - none of the anti fungal mouthwashes worked for me as well as Lyderm gel did. It is for topical use but can be used off label for the mouth too. Tasted horribly bitter, but cleared my mouth as well as genital area, even though I only applied the gel on my gums/cheeks inside my mouth.

The laser treatment that @dreamer60 had seems to be an even better solution, however.

My dentist sent a biopsy of my sore gums to a lab and the diagnosis was lichen Planus.
That was 2015. It still comes and goes.

I belong to a LS support group on line and I don’t believe LS has been recognized as an autoimmune disease yet. We all who are inflected with this disease truly wish our disease would meet the criteria to be recognized and supported under our medical plans for treatment. It is not covered here in Canada. I paid over $2000 out of pocket for 3 treatments at Nova Womens Clinic and may have to have more treatments. Other countries like USA also are not covered under any medical plan. If you check the LS database, you will find a very large group of patients everywhere who are suffering from LS and with no coverage.