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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: May 5 6:09pm | Replies (751)

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@nolarn

Ginger, you seem grounded and very knowledgeable about MGUS. I live near Boston and Dana Farber and have been looking their PROMISE clinic and research. Their goal is to find the MM precursors so that people with MGUS don’t progress to more advanced illnesses. Some of their research (I think) points to more aggressive treatments rather than watchful waiting. Your thoughts? Many thanks!

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Replies to "Ginger, you seem grounded and very knowledgeable about MGUS. I live near Boston and Dana Farber..."

@nolarn Thank you for the compliment. I'm all for research that will help point the way to slowing down/heading off advancing illnesses of any kind! So many times it takes stepping out of the box of what may be deemed conventional medicine and bravely looking at things in a new light, from a new viewpoint.

While research seems to point to the idea that there is no clearcut cause of MGUS, it is my belief [your mileage may vary!] that some people have a proclivity to certain maladies, or malady families as it were. For me, it is several different autoimmune conditions, as if my body is entertaining its own little civil war.

Would I have loved to be part of such a study for MGUS? You bet! As an active multiple myeloma patient, if I could assist in any way, I would be happy to. Did you notice that Dr. Irene Ghobiani trained at Mayo Clinic in Rochester, MN? Nothing ventured, nothing gained, in the field of blood cancer patients, and helping everyone to live their best lives possible!
Ginger