Your son had a bone marrow transplant at the same age as my son and my son just turned 34. I am so sorry your son did not survive. At the time that they had BMT transplants the survival rate was very low. I have of course been grateful my son survived and he has bern cancer free since but life has often been difficult and challenging for him in other ways (and me by extension) because of the cancer treatment experience.
We are located in Houston with several very good kidney transplant clinic options. We have talked with Mayo and need to complete testing there. He is currently listed with 3 clinics locally. Two of which we recently discovered will use rapid steroid withdrawal if the match is good enough. One of them called us last week with an excellent match but 2 hours before surgery we were told the biopsy report could not be verified and they called off the transplant. But through this we learned he is at the top end of the list for that clinic. One of the other clinics is preparing to take me to committee to see if I will be approved as his donor and as well as a couple of others we have found through social media that stepped up to donate (I am overwhelmed with their generosity). So all and all it seems things are moving along at a faster rate and we are hopeful he will be transplanted in the next several weeks.

Are you doing well following your transplant? Did you have a dedicated live donors?