I do not have ET but I do have PV. Your ET is one of the three Philadelphia chromosome-negative Myeloproliferative Neoplasms, ET, PV, and MF. I just call mine PV for short. I was diagnosed with PV after having a very high platelet count during a doctor's visit. After having the most detailed blood testing of my life, I was diagnosed with PV with the Jak 2 mutation. I thought with a genetic mutation I would have superpowers like Spiderman but those abilities never arrived. I have been taking Hydroxurea twice a day at 500mg. along with baby aspirin. Four years later and this PV has not had much of an effect on me. I have fatigue late in the afternoon and at night so I do all my important activities in the mornings. I go to my gymnasium 3 times a week and stay active. I think this helps immensely. I too have ringing in the ear but I am sure that was from my field artillery days in the army. Other than getting tired at night, I have little if any pesky symptoms to slow me down. I wish you the best,
James, 63 and enjoying life to the fullest

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