Thank you for the welcome John! It's really good to connect with others who have experience with this rare disease and hear their stories.
We are waiting to hear back from the doctors. It seemed like his symptoms /disease were a little better with the prednisone.
Thank you to all the others who replied and attached information. He was positive for PL-12. It seems like there is a genetic component to auto immune disease. He has a brother who has an auto immune condition. So far, they are the only ones in their family.
I find it difficult right now to deal with him being immunosuppressed and so much illness going around. I am scared he is going to catch anything, so we wear our masks everywhere and around people.