I just heard something very interesting, that diabetes can trigger gastroparesis. Do you have any symptoms of diabetes?

Seems to me if you are having nausea in the morning you might have slipped down off your wedge pillow or too low on it to prevent esophagus reflux. This happened to me. The other problem I had was that I was continuing to suffer from slow stomach emptying so last night’s food was still in my stomach not digested so that gave me nausea in the morning. I tried raising the head of my bed by putting books under it and that helped a lot, as well as a change in prescriptions. I now take domperidone (the biggest help) as well as Previcid and sucrafat.

Make sure nutritionist knows something about gastroparesis….. the one I went to had pregnant brain & I knew more than she did! I bought a book on Amazon about gastroparesis …..I’ll look it up in my photos & send you a copy…. Not home at the moment…. Website’s & FB has been a big help to me…. I was diagnosed Oct 2020.

This is the book….Living With Gastroparesis

Thanks all for the advice! Much appreciated. Mike

Hi,

I've had gastroparesis for a number of years, dating back to at least 2012. But I remember symptoms long before then (2012 was, I think my first hospitalization. I gravitate to foods that made me feel better-smoothies, etc.

As for meds, I'm running out of options. There's motegrity, which the insurance doesn't want to cover, or domperidone which none of the providers want to write for (they don't do out of the country). Many of the meds cause extrapyramidal side effects and I had to stop taking them. After a traumatic brain injury, weed began causing seizures, time to stop'!

Due to scar tissue the gastric stimulator isn't really an option either. The botox is an option. My GI here at home is putting in an expedtited referral back to Mayo in Rochester.

Not sure what to think, just trying to keep it positive.

Anyone hear of Reliefband? http://www.reliefband.com. Any thoughts? Thanks again. Mike

I was diagnosed with gastropariesis in 2010 after enduring many scans, scopes etc. My MD suggested I purchase domperidome via Canada as it was not acceptable by FDA. He also suggested I’d likely need to purée my meals, not eat after 5pm. I was resigned. Researched domperidome and opted to avoid it.
While having a deep muscle massage for back pain (which seemed to accompany bad episodes of stomach challenge) the massage therapist asked if I was having digestive issues,”because my psoas muscle was in firm spasm”, I affirmed I’d struggled with serious digestive issues but as I’d been told I was not curable, I was resigned.
The therapist assured me she understood as she had previously struggled with It. She told me she planned to work to release my psoas spasm, though it would be very uncomfortable and may take more than one massage.
She was right. It was very uncomfortable. But, after the second massage, I realized my sick stomach wasn’t knawing at me and within days, I realized I wasn’t waking around midnight throwing up with nausea. I could eat! I could eat salad!!
For some years, if I felt my stomach was tightening, I’d schedule psoas massage.
It’s been years since I’ve suffered with inability to digest food.
I do have scoliosis, which contributed, but I have learned ways to stretch my psoas anytime I feel it tightening.
Not all massage therapists are knowledgeable enough to release psoas spam. But, for me, it has been remarkable!!

Hello sorry for your suffering. I have the same issues that you do and I cannot eat at all after 5:00 pm if I do I can’t sleep no matter how elevated my pillows are. The other thing I have to deal with is to make sure after eating that my food has gone down my esophagus. I have a lazy esophagus and while I’m eating the food just sits there. If I don’t pay attention the food just sits there then swallowing is very painful. Very painful. It’s a lot of fun dealing with all of this isn’t it?

I am at 40 mg a day. I have tried to reduce to 30 mg but it’s just not working for me. I need 40 mg for it to work effectively for me. I know at 30 mg which is the recommended dosage, there is less chance of heart problems. However my doctor said that if heart problems were to arise, I would know by now.