Oh my goodness, smatthews, I have never heard of these disorders, but that sounds like it could be exactly what's going on with me. I also have a reversed lordosis in my cervical spine, which I have known about for decades. I definitely have an injury at the C0-C1 level from my childhood neck accident, and I definitely have laxity along the rest of the cervical spine. Thank you so much for sharing this!

It happens that you sent me this message an hour before I had an appointment with a pain management specialist at Mayo. He was unfamiliar with the disorders and dubious about injections, but he said he would ask his colleagues about it. It's been about a week, and I have not heard back, so I will do my own research.
I did tell him how I get temporary relief when I lie on my back and my son and husband hold the back of my head with their hands, applying a tiny bit of pressure with their fingers along the occipital ridge where the spinal cord begins. Sometimes it is the only way to release the nerve cascade that happens when points further down on the vagus nerve get irritated, and I can't sleep. He was very curious about that, and glad that that provided some relief, but it's something I can't do for myself (I have tried multiple ways), and I feel bad imposing on my family members day after day, so I like to figure out another strategy.

Are these injections something you have tried? Can you tell us about your experiences? I am so grateful for your sharing this information, and very hopeful that it has worked for you. I'll be really happy if it works for me too!

No milk at all of any kind 10 years .
I’ve tried Beano and everything Rhett make for gastric health on the market .
I don’t eat beans or many foods , esp gassy foods !
My body just produces so much gas when I eat or don’t eat .
It’s disturbing to be in constant distress. Tks for caring

Hi! I hope this isn’t a duplicate comment bc I just lost the one I was working on!! But I just wanted to say that I am so sorry that you are dealing with all that. I am seeing a PT that specializes in myofascial release and she has a therapist that I will be working with soon that deals with vagus nerve problems and helping to release pain associated with it. Maybe this could help? I find my PT sessions to be very helpful in relieving pain and helping me to relax and get a good nights sleep:) Check out this link if you’re interested. My PT trained under John Barnes and there is a link where you can look up if there is a PT in your area that does this. I hope this helps! Prayers for you and all that are suffering…❤️
https://myofascialrelease.com

My gas is mostly deep wet gut lining tasting belches .
So many one after other and churning gut .
I’ve learned much over the past 10 years, trying everything.
I won’t go into that much as it’s too much to type .
After 6 th Gastro, I’m on an anti depressant ( it’s an old one but not one I’ve tried before ). I started on like a child’s dose and then bumped up to reg adult starting dose recently.
Thankfully this one isn’t giving me horrible side effects.
I’d say it’s helping about 30 percent.
It does not help w/ sleep 💤 as she said it would.
So I still take my 5 mg Ambien when needed .
I also take .50 mg Klonipin as needed ( that’s been for years ).
I’m taking diff supplements as well . I’ve tried them all . I’ve tried everything they make for gut health on Amazon or online .
I Watch everything I eat . Eat healthy at home 🏡.
I’m so sorry 😢 for your cancer .
Can I ask what type ?
I’m going to pray for you .
God Bless …

Has anyone had trouble with trying to swallow and the food just would not go down? What tests did you have done. I had endoscopy about 4 years ago and at that time the doctor could not find anything wrong. It really hurts in the middle of your chest, until it finally goes down. It also causes so much phlem and have to keep spitting it up!

Yesterday morning I awoke to extreme dizziness like I have never experienced. I thought perhaps my blood sugar was low, so I made liquid white eggs. Not feeling any better (as my dog waits to go out), I sat down in my recliner. All of a sudden I vomited up all that I ate/drank and felt even worse. Then I developed pain in my left butt and leg, severely limiting my ability to walk without pain. My friend thought it was a vagus nerve disruption.I googled same and it sure seems like it was. I am writing this the following morning, and I still have the butt/leg pain. It was painful turning over in bed.Does this sound familiar to anyone? Can anyone lend some helpful advice? Yikes!!!!

I have several symptoms that I believe may be caused by Vagus Nerve issues: burning/tingling across clavicle, throat, upper arms shortly after waking (5:00-5:30 am); IBS; painful bladder. Does my self-diagnosis make sense? If so, any insights?