Connect
← Return to MGUS monitoring: What tests do you have done regularly?
Discussion
MGUS monitoring: What tests do you have done regularly?
Blood Cancers & Disorders | Last Active: Dec 23, 2022 | Replies (33)Comment receiving replies
I have just been diagnosed with MGUS and have been reading up on it before my first hem visit next week. There is a new study out of Dana Farber showing very high correlation between MGUS and coronary events like MI or stroke. Has anyone had these results discussed with them or their treatment changed in any way? The doctor at DF is well-respected Dr Ghobrial. Thank you for sharing your information with this group.
Replies to "I have just been diagnosed with MGUS and have been reading up on it before my..."
@nolarn Welcome to Mayo Clinic Connect! So many of us who are diagnosed with MGUS find out when our team may be looking for something else that seems to be going on with us. Back in 2017 when my hematologist told me about my MGUS, I wonder if there was any information like you shared, available, since no one ever said anything! Now that it has morphed into active multiple myeloma, there has been no discussion about cardiac nor stroke issues.
How did you find the study? You must be well-versed on research!
Ginger
I haven’t been able to find this article by Dr. Ghobrial On the correlation between MGUS and coronary event. Could you please post a link to it.
Thank you
Connect
Thank you, nolarn. I looked up the doc you mentioned because I’m participating in her PCROWD study at Dana Farber. Every six months I let them know when I will see my hematologist and they send a kit to receive a vial of my blood which will be Fedexed back to them. Suggesting you may want to contribute to PCROWD also.
We are all in this MGUS journey together, and though I will never know what they learn about my blood, I’m glad to contribute to their research. Locally in Los Angeles, I’m also contributing to Cedars-Sinai’s Embarc Study. This one provides feedback up to monthly.
Yes, I have a few known cardiovascular risk factors, and they are concerning. So far I’m doing okay. Bless you!