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Hypereosinophilic syndrome (HES)

Blood Cancers & Disorders | Last Active: May 14 4:41am | Replies (59)

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@donnahes

Did they test him for cancer? They did a bone marrow aspiration for me to look for a few cancers all came back negative. My immunologist also is suggesting nucala for me rather than life term prednisone. Is nucala working for your grandson? What makes them think there is a cancer possibly?

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Replies to "Did they test him for cancer? They did a bone marrow aspiration for me to look..."

Yes he was tested for cancer but everything came back negative. They only told us that high eosinophils can cause cancer and since his were high for so long its a big possibility. His bone marrow biopsy just came back with very high eosinophils. Every lyphmnode in his body was swollen when he went into the er. He gets another bone marrow biopsy done next month. They were certain he had leukemia when brought into the er but test came back negative. Yes the nucala is working very well. His levels haven't been above 900 with the nucala shot. We give the shot to him from home once a month. He has labs done biweekly now. Everything is so confusing to us they can't give him a prognosis but tell us this will be a lifetime struggle for him and is incurable.