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Hypereosinophilic syndrome (HES)

Blood Cancers & Disorders | Last Active: May 14 4:41am | Replies (59)

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@donnahes

i was also told by the allergist/immunologist that this is a pre leukemia condition because my bone marrow shows a mutation that is seen sometimes in leukemia and lymphoma however i tested negative for this cancer and the oncologist i went to never stated that. also stated it was not an issue. wondering if anyone else has experienced that as well.

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Replies to "i was also told by the allergist/immunologist that this is a pre leukemia condition because my..."

Hello, my grandson recently was diagnosed with idiopathic hypereosinophilic syndrome and its all new to us as well, but they started him on a shot called nucala to bring his eosinophils down because he can't take any form of steroids due to him also possibly having cancer. They said his is also pre leukemia condition and the steroids will mask any cancer if it is growing in his body. I don't understand this and I have searched everywhere to help get answers. Your dr should listen to you about the hair dye because the immunologist told us that certain allergies can rise your eosinophil count.