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High Platelets

Blood Cancers & Disorders | Last Active: Feb 9, 2023 | Replies (63)

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@dwlowrance

Thanks for your post. I am now 75 and found Essential Thrombocythemia as my first chronic disease. I began a battle with high platelet count about 5 years ago. My platelets from Essential Thrombocythemia were over 1.0 million without any drugs until my first 2 doses of the Moderna SARS2 vaccine and spike proteins in early 2021. The vaccine caused my platelet count to exceed 1.5 million and I noticed pressure in my brain. At that point, I began to follow the prescription of my Oncologist to take Hydroxyurea. The platelet count dropped to .4 million with 2 pills per day and caused my tongue to swell and become inflamed. My Oncologist adjusted the dosage to 9 pills per week and the platelet count was .6 million in my last blood test. I believe the long term effects of large doses of Hydroxyurea include fatal pancreas disease, so I am evaluating periodic cessation of the Hydroxyurea. The balancing game of the jungle of drugs and side effects never ends. This is my medical experience and I hope it helps you deal with an undefined fear of stroke used to coerce compliance with drug usage.

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Replies to "Thanks for your post. I am now 75 and found Essential Thrombocythemia as my first chronic..."

I’ve had a high platelet count close to two years. They’re calling it Thrombocythemia they did some genetic tests yesterday and I haven’t had bone marrow done yet . I’ve started having problems from bleeding taking the aspirin . He said to stop the aspirin and we could take the platelets out with a machine that removes from your blood . My feet and hand turn all shades or red and burn like fire all the time or their cold as ice turning white or blue tingling . The haven’t felt well in very long time . The blood doctor thinks I have MPN or something like that . I am a smoker which is likely not helping this situation but I’m struggling to quit it’s a very strong addiction. I hope we will all be ok . This is very scary . Really it is . Looks like there’s no end to this will be an ongoing problem.