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@marie03 I can see how frightened and frustrated you are feeling. Word finding problems (expressive aphasia) is real and there are many reasons why people experience this. Are the words you have trouble with mostly nouns such as names of people? Places?
What is your age now? I couldn't quite figure that out from what you wrote.
Are you taking any other medications? There are medications for hypertension (high blood pressure), for instance, that can cause the type of word finding problems (expressive aphasia) that you describe. Also, some of the older antidepressants such as amitriptyline that are rarely prescribed for depression these days but are prescribed for migraines can cause word finding problems.
Do you have any difficulty with speech comprehension - understanding what is said to you (receptive aphasia)?
Do you still have epilepsy? Seizures? I don't know if an EEG would give you the information you are after but you can ask your doctor that question.
I know, lots and lots of questions from me! I'm trying to do some problem solving here to help you figure out where to go next.
If you'd like to be evaluated for aphasia in the context of brain-related disorders I suggest that you ask for a referral to a clinical neuropsychologist. Clinical neuropsychology is a speciality within psychology that evaluates for memory, language, and thinking skills.
-- https://www.apa.org/ed/graduate/specialize/neuropsychology
Can you provide me with more information so I can support and help you?
Replies to "@marie03 I can see how frightened and frustrated you are feeling. Word finding problems (expressive aphasia)..."
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I feel like the word thing is a daily word. Used in every day conversation. Person to person, on TV, in songs...yet when I try to rewind or have a person repeat what they say I don't notice it. I honestly can't say if it's a noun. I know it's not a name or place. I don't think it's even an object. I can be cooking and suddenly it crosses through but I don't know it. It actually happened at the beginning of typing this.
I'm 34, 35 on the 3rd. Still have epilepsy but the tonic clonics have lowered tremendously. I've been diagnosed with tonic clonic, Complex partial, and simple partial. All starting on left side of brain.
I also have Lupus, sjogrens, and Raynauds, and horrible anxiety due to seizures and my husband's motorcycle accident. I take Trileptal, amlodipine, alprazalam, cellcept, hydroxyzine, and gabapentin (which is new).
I sometimes have trouble understanding what's being said. I know there's been tons of times where ppl will be talking to me and I'll just be standing there obvious. Or there will be times where I seriously have to have something repeated more than 4x and even then I'm trying to figure out if I heard it correctly.
I use to write, read, honors English in hs. I was that annoying person who corrected others and now...I feel like an idiot. It's so embarrassing.
My friend who is worried sometimes wonders if im having a seizure when I go mute.