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Heat Intolerance: Symptom of Neuropathy?
Neuropathy | Last Active: Feb 16, 2023 | Replies (108)Comment receiving replies
Has anyone had this? I got this in 2014. It changed my life. I don't work, I don't go to the gym anymore, I don't date. I pretty much gave up my whole life. I went to all kind of doctors. Mayo in Phoenix, dermatologist, endo, everybody! My neurologist here said it was a small fiber neuropathy. I found a specialist here in Jacksonville and made an appointment. I was on a waiting list almost a year. I seen Dr. Cheshire, neurologist with Mayo Jacksonville. I had a bunch of nerve tests done. He confirmed it was small fiber neuropathy. But, I lost my life. I keep my house at 68 degrees. I have had this since 2014. I miss my life. No cure. Anyone else have this. I just burn up anywhere I go. I don't travel anymore, I don't date. I don't go anywhere. I'm lost. I don't know anyone that has this. There is no cure. I don't know how I am supposed to live like this anymore. I'm 52 years old. Anyone? In the winter I don't use the heat. I let the house get down to fifty something. I don't cook in the summer. My family...well, it was a bother to them so I have no support. No one. I would love a significant other, but I guess I will die alone. Who am I going to meet that is going to sit in the house with me? No one. I'm sad. I have no idea what caused this.
Replies to "Has anyone had this? I got this in 2014. It changed my life. I don't work,..."
Hello @brooklyn4870 and welcome to Mayo Clinic Connect. I can tell this has not only been life-changing but also really trying on you personally and with your family as well making it all extra difficult.
I am so happy to see another member, @sharka, has joined you to share her experience and to let you know you are not alone.
To that note, you will notice that I have moved your post into an existing discussion on this same topic where other members have been sharing as well.
Aside from controlling the temperature you are exposed to, have you tried anything else along the way that worked, or didn't' work?
I feel bad for you. You sound so down. Don't give up on meeting some one. Maybe join some clubs or activities connected with your church or house of worship. I have friends that volunteer in the churches food pantry and have meet some nice people. One friend of mine has a son with many health challenges in a wheelchair but has managed to get out and about and just recently announced his engagement.
On a another note , don't let the house temp. go below 55 because the pipes might freeze.
I hope in some small way I've helped...good luck.
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Hello there!
You're definitely not alone in this crazy temperature intolerance world.
I was diagnosed five years ago with sfn, but my drs saying I probably had it for much longer.
That's when my hot flashes started, but even worse is the chills 😫!
I'm shivering one minute, and as soon as I put cardi on, I'm steaming hot. And when I'm on fire, I'm all red, so everyone can see it, but I don't care anymore.
It's so annoying. I've got this for five years now. I've just learnt to live with that, because we have to! I just keep changing my clothes a few times a day, or just have layers which I'm piling on or off!
In winter my hubby just use blanket when watching TV, and at least we save on heating bills.
Was hard to sleep with this flatuating temperature, but now for the past month I'm using medical marihuana oil, 10mg cbd and 10mg thc in one milligram, which I gradually got from 0.5 ml to 1 ml and now sleeping like a baby, and that's make my life much better.
My dear, you're not alone in this !!!
Try to enjoy every day, because this sfn can become eventually worse, but not necessarily, everyone is different! 😉 😊