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Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Neuroendocrine Tumors (NETs) | Last Active: Dec 28, 2023 | Replies (42)Comment receiving replies
Hello @rogo and welcome to Mayo Connect and to the NETs discussion group. I'm glad that you found this forum and that you have chosen to share your NETS journey here.
Your doctors are correct in saying that NETs/carcinoids tend to be a slow growing cancer. I have had three surgeries for carcinoids in the upper digestive tract beginning in 2003. I'm sure you are relieved to have your surgery behind you and to be feeling better now.
I would like to introduce you to another member, @melmangen, who also had a lobectomy this year. I hope that she joins this conversation and shares some of her experiences with carcinoids.
What type of surgery did you have and how long was your recovery?
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I had a lobectomy. They did not crack my ribs to do it. They did it with 2 small holes in back with robot assistance. The first few days were horrific . There was a big tube inserted and I think it did nerve damage as I still can feel the pain. . It took 3 months for me to be able to go back to normal living.