Connect
← Return to Staying strong and facing an uncertain /certain future
Discussion
Staying strong and facing an uncertain /certain future
Caregivers | Last Active: Jun 22, 2023 | Replies (60)Comment receiving replies
Thank you for asking. Initially I did a week of crying, and making phone calls to see about different transplant centers criteria. My husband and I talked about my efforts. He said he was not going to aggressively pursue anything as he doesn’t believe anything is imminent. He said he doesn’t want to read about it, talk about it or think about it. He will make decisions as necessary. He said he has to do that for his mental health. There is nothing happening right now as it could be months before the transplant center even calls. He still functions fairly well-he takes piano lessons, we play dominoes every night, he does some things around the house. He just sleeps a lot-maybe 15-18 hours a day.
I have stopped crying all the time. I realize that this is something I have no control over, except to be supportive and listen to what he wants. This is the part of life that is very hard. But I am also very grateful that we have had each other’s back for 53 years(in December) .
Replies to "Thank you for asking. Initially I did a week of crying, and making phone calls to..."
Connect
I read your post last week, and thought back to it this morning. My husband started chemo treatments for colon cancer November 30th. He was diagnosed two years ago, and after three and half months of chemo at that time, he had surgery for the tumor. He had a couple spots show up one year ago, and had chemo again at that time. He had clear scans following and then this September a PET scan showed multiple lymph nodes and a nodule on his abdomen. So he began chemo again. He had his second treatment of 4 (or 5) last week. He had been doing fine, continuing to work, etc. However, yesterday he felt awful; nausea, fatigue, could barely get up, and ate very little. The memories of two years ago, when he took this particular chemo, I believe Folfox, came back. It is just so hard to watch, and he is suddenly like a different person again. I have notified the oncologist's office, and they will get back to me. But I just needed to vent about the awful side effects and that feeling of your life being on hold, again…..
So thankful for this forum.