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Need transplant but don't have a caregiver.
Caregivers | Last Active: Nov 21, 2022 | Replies (7)Comment receiving replies
Thank you for the response. I do have a transplant coordinator, but I fear that if I tell them I no longer have a primary or secondary caregiver they will change my active status on the wait list to inactive. So I am trying to figure out other options to prevent that from happening. Thanks again for any help.
Replies to "Thank you for the response. I do have a transplant coordinator, but I fear that if..."
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@cwendel77, that is a valid concern. It is quite possible that a patient will be temporarily listed as inactive if they don't have caregiver support. Without a caregiver. organ offers cannot be made. But inactive is not a permanent status.
In my humble opinion, you really need to be honest and talk to your care team - coordinator or social worker. Ask them to help you problem solve this situation so you can find someone to be your caregiver. You have to concentrate on your health. A social worker can take the load off and help think creatively to find a potential solution with you.
Social workers and nurses can possibly give you new ideas and actions to take that have worked for other patients that you may not have thought of. That's part of their job and they do it well. They want you get a transplant as much as you do.
I encourage to talk to your coordinator and ask for a consult with a social worker. I'm rooting for you.