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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Dec 16 1:26pm | Replies (400)

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@randles14

I’m wondering who tried the keto diet and how it worked. I started keto a year and a half ago and then was just diagnosed with JAK2/PV in September. I felt great on keto, but after a year was so burnt out on it and have slowly started incorporating carbs/sugar back into my diet.

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Replies to "I’m wondering who tried the keto diet and how it worked. I started keto a year..."

I have used nutritional ketosis to help keep my PV in check. On a normal American diet with sugar and carbs, I have to have a phlebotomy once every four weeks or so. When I am in full nutritional ketosis, I can spread the phlebotomies out as much as five months in between each one. Your milage may vary but that has been what I have experienced.

When you were on the Keto diet how often did you have to do the phlebotomy? I'm looking to reduce my time from once a month to further out. @chadknudson had success with this. What I have read is you should only be on a low carb diet for about 6 months.