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Cryoglobulinemia: Want to connect

Blood Cancers & Disorders | Last Active: Jan 9 10:02am | Replies (17)
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@zebra2022

Currently I am seeing a nephrologist for the kidneys. I also have my rheumatologist, oncologist/hemotologist, primarily. but I also have G.I. specialist, ENT, eye doctor, and primary. Mainly because I want all my doctors on the same page as to my diagnosis. I've been running into medical issues with everything since my diagnosis. I don't have hepatitis or lymphoma.
I was told it stemmed from my sjogrens.

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Replies to "Currently I am seeing a nephrologist for the kidneys. I also have my rheumatologist, oncologist/hemotologist, primarily...."
Becky, Volunteer Mentor | @becsbuddy | Nov 20, 2022

@zebra22. I know how difficult it is to have so many doctors. It can be very confusing for me. Luckily, most are on the same patient portal so they can all see test and imaging results. And i send my primary doctor notes from time to time just to make sure she’s “in the loop.”
I also keep a small divided notebook with a space for each doctor/speciality. I jot down questions, lab tests or imaging, what the doctor says, and new medicines (or cancelled ones). This notebook goes to all appointments with me!
What do you do to keep everyone straight?

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