← Return to Investigations for pancreatic lesions, NETs? Confused and concerned

Discussion

Investigations for pancreatic lesions, NETs? Confused and concerned

Neuroendocrine Tumors (NETs) | Last Active: Nov 21, 2022 | Replies (12)
Comment receiving replies
@colleenyoung

I agree with @hopeful33250. It sounds like your doctor is being thorough and wants to keep an eye on your pancreas just in case. I hope that can give you some comfort rather than worry.

I'm also tagging fellow pancreatic NETs members, like @kt348 @sturns @elm60, who can share their investigative procedures and how monitoring was done for them.

Jump to this post

Replies to "I agree with @hopeful33250. It sounds like your doctor is being thorough and wants to keep..."
EM | @elm60 | Nov 20, 2022

Hello @cottagepeople!
My pancreatic NET was found during an EUS for a liver biopsy! I was a asymptomatic and experienced no pain, but I had GI issues for years prior from Irritable Bowel Syndrome, IBS.
In 2019, when I had the Whipple surgery to remove the tumor at Mayo, they actually removed 2 NET tumors. In my 2021 MRI, they now show a pancreatic cyst 7mm on the pancreatic head. My doctor is also not alarmed by the find, due to the size, and we will watch and wait. My next yearly MRI is in December. I am so glad that you are also undergoing the surveillance by your doctors. There is no need to worry right now. Try and focus on the positives and thankful that they will watch your situation with the upmost care. It truly sounds like you are in good hands. 🙏✝️💜

VIEW AND REPLY