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Non Hodgkin's Lymphoma- Watch & Wait Approach

Blood Cancers & Disorders | Last Active: Apr 13 11:51am | Replies (199)

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@jam5

Lori,
Thank you for the article, and for your inquiry also
I am still uncertain as to the type of non-Hodgkin's lymphoma-MZL
Is it MZL, SMM, WM or a few ??
The wild type and AL cardiac amyloidosis , diverticulosis, and pancreatic insufficiency complicate things, hemoglobin 10.8, light chains (kappa& lambda-more kappa), fatigue, some digestive issues intermittently, and current kidney stones ? I am not sure at times where to begin. Just trying to maintain office visits nd manage one symptom at time
At present, watchful waiting and still contemplating another opinion- uncertain if Dana Farber or Boston University medical
I feel a complete multidisciplinary team is preferable, rather than another check-in at MSK hematologist. sent last labs to MD at MSK who saw him in 2022, and she feels all is in order at present ??
Hope you have a Happy Thanksgiving

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Replies to "Lori, Thank you for the article, and for your inquiry also I am still uncertain as..."

You’re like me…we like to chase things down until we have a definitive answer. However, there is also a time to step aside and trust the hematologist. If your husband’s doctor feels everything is in order and he’s not having any new or worsening symptoms that may be all that can be done right now…to stomp out the little fires as they erupt. Everything may very well be in order at the present. Quite a bit can be determined from blood results and if she didn’t notice anytime amiss, then maybe take that a face value.

A second opinion from a multidisciplinary medical facility is never a bad idea if you’re not satisfied with his current care. Dana Farber has a very good reputation (besides Mayo, of course! But that’s not as convenient for you).
He’s seeing a doctor at Memorial Sloan Kettering now? That’s a highly recognized institution for cancer treatments and advancement so unless you’re really not happy or don’t trust his doctor, you and your husband might take some comfort in not having to search for another clinic.

For now, if I were you, I’d just cruise into the holidays on the news that all his bloodwork results were good and don’t look around for trouble! It finds us anyway without is looking for it! 😅

Happy Thanksgiving to you and your husband! Our daughter and son-in-law are flying down for a week to be with us in Florida for Thanksgiving. That’s a first time for them so we’re really looking forward to having them here and celebrating a holiday together. Looks like we’ll actually need to make an effort with a turkey and all the fixin’s instead of our usual ‘shrimp on the barbie’ this year. 😂