← Return to Burning Mouth Syndrome: Anyone had success with compounded mouth rinse

Discussion
Comment receiving replies
@loribmt

Hi @kcarson123 and welcome to Mayo Connect. Oh my gosh, I’m so sorry for your loss. I can’t even imagine losing your husband at such an early age. What huge adjustments you’re having to face. The stress and emotions can have a profound impact mentally and physically.

Burning mouth syndrome is not a welcome situation. I just went through a couple of episodes of that myself. I do have a pre-existing medical condition that has spawned this but it still stems from an autoimmune response so I’m wondering if the med my doctor prescribed might also benefit you.

It is a steroid RINSE called dexamethasone .05 mg/ml.
For burning mouth it used off label as it’s NOT swallowed. So you won’t have the side effects of oral steroids.
I had to rinse for only 30 seconds and then spit it out. Then no eating or drinking for a half hour. 12 hours apart.
It was a game changer for me! Within a couple of days my mouth was 99% improved. Only one little patch of irritation remained and for that I have a topical gel that has been working like a miracle. But for the general burning mouth, the Dexamethasone rinse works like a champ. If I feel it returning I can use it as needed. It’s worth asking your doctor.

Also, if you haven’t already, stop using any product with mint such as toothpaste or mouth rinses and use non-mint dental floss. I had to switch to children’s toothpaste and found that Bert’s Bees Children’s paste works really well with no burning tongue! I also use a small children’s toothbrush now too.

There seem to be trigger foods for me such as anything salty, crunchy, acidic or super cold!
So no pickles, mustard, hot sauce, chips, salsa…you get the picture. But lately I’ve been able to reintroduce a little ketchup! Yay.

Over the counter mouth rinses such as Orajel or simple lukewarm saltwater rinses can help sooth the mouth.
Have you tried Orajel or salt water rinses?

Jump to this post


Replies to "Hi @kcarson123 and welcome to Mayo Connect. Oh my gosh, I’m so sorry for your loss...."

Thank you so much for the reply and all the helpful information. I haven’t tried much except chewing gum and at the beginning they thought it was Thrush so the doctors prescribed Nystatin which didn’t do anything but burn more because I didn’t have Thrush. Yes, it’s been a very difficult process losing Chris. I’ve had every test there really is to be done and the doctors believe this is all caused by trauma and anxiety. I start EMDR therapy on Tuesday and I’m hoping that helps me. I have had a hard time accepting this is from trauma but I know things like this can be triggered from traumatic life events. BMS seems to be a very complicated Syndrome as there are so many different causes for a burning mouth. Thank you so much again for all the helpful information! Let’s keep in touch!