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← Return to MGUS: Please, let me know I not alone
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MGUS: Please, let me know I not alone
Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)Comment receiving replies
I’ve had idiopathic neuropathy for 6 years which has progressed a lot as of late. I decided to come to MAYO for a second opinion. When doing blood tests I came back for having MGUS. Everything I’m reading there appears to be a strong connection? I’m seeing neurologist on Tuesday.,
Replies to "I’ve had idiopathic neuropathy for 6 years which has progressed a lot as of late. I..."
Sorry to hear that your Neuropathy has progressed over the past 6 years. Do you have IgG, IgA or IgM monoclonal protein? IgM is responsible for Neuropathy in most cases but less likely with IgG or IgA. I have IgG MGUS and my neuropathy has slightly progressed for the past 4 years. Nerve conduction studies should also show the type of Neuropathy
I have smoldering MGUS which was diagnosed on a blood test by accident in 2003. There really have been no changes. I started seeing the cancer Drs twice yearly depending where I lived, as I moved around. Some Drs want me in twice yearly, other's once. I also had to have an iron transfusion, as my ferritin got really low. So far all ok.
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@pdyer134 Welcome to Mayo Clinic Connect! You have joined the countless others who have their MGUS diagnosed when looking for something else. It really is a common way we find out about it.
What questions do you have for us? And, more importantly, how do you plan to take care of yourself this weekend while you wait for the appointment? I know all too well the anxiety pitfalls we can fall into waiting to talk to another medical professional!
Ginger