Thank you for asking. Initially I did a week of crying, and making phone calls to see about different transplant centers criteria. My husband and I talked about my efforts. He said he was not going to aggressively pursue anything as he doesn’t believe anything is imminent. He said he doesn’t want to read about it, talk about it or think about it. He will make decisions as necessary. He said he has to do that for his mental health. There is nothing happening right now as it could be months before the transplant center even calls. He still functions fairly well-he takes piano lessons, we play dominoes every night, he does some things around the house. He just sleeps a lot-maybe 15-18 hours a day.
I have stopped crying all the time. I realize that this is something I have no control over, except to be supportive and listen to what he wants. This is the part of life that is very hard. But I am also very grateful that we have had each other’s back for 53 years(in December) .