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Empty Sella Syndrome

Brain & Nervous System | Last Active: Oct 30 3:21pm | Replies (142)

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@colleenyoung

Hi @amomma4, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this existing discussion group about Empty Sella Syndrome. I did this so you can meet others who have this condition like @menville @jmb73 @cshrubb @sdsavage @cherrylistic @dankshin and more. Click VIEW & REPLY to read through past posts.

I find the information about empty sella syndrome on the NORD site to be excellent https://rarediseases.org/rare-diseases/empty-sella-syndrome/

It is upsetting to read the results of testing before being able to meet with a specialist. Waiting for an appointment with neurology must be tough. Most patients with ESS don't need treatment if they are not experiencing symptoms. Are you experiencing any symptoms? Has your ear issue been resolved?

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Replies to "Hi @amomma4, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this..."

@colleenyoung Thank you for moving my post to the correct area. I look forward to being able to educate myself better and learn more by meeting and speaking to others who have empty sella as well. I have an appointment with neurology this upcoming Wednesday to go over the next steps.