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← Return to Empty Sella Syndrome
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Hello everybody, I've just joined this group today, because I was diagnose last week with ESS. Up till then, I had been getting an annual MRI to check on my adenoma, and had been taking Dostinex for three years to lower my prolactin levels which at first were hovering around 200. Normal range being below 18. I'm a 54-year old male.
So imagine my radiologist's surprise last week at finding an empty sella where my enlarged gland used to be. He was baffled.
I guess I'm sharing this because I wonder how many other members of this discussion have gone through this bizarre arc?
Replies to "Hello everybody, I've just joined this group today, because I was diagnose last week with ESS...."
I was found to have ESS not because of an adenoma. But because my spinal fluid has increased because it thinks I have a tumor, the condition I have is called idiopathic intracranial hypertension or pseudotumor cerebri.
Hi @dankshin, I would like to add my welcome to Connect along with @lisalucier and other members. I don't know very much about Empty Sella Syndrome other than what I've read on the National Organization for Rare Disorders site -- https://rarediseases.org/rare-diseases/empty-sella-syndrome/. The site mentions that most individuals with empty sella syndrome do not have any symptoms and do not require treatment. If symptoms occur, a treatment is directed toward the specific symptoms in each individual.
Do you have any symptoms from the condition?
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Hi, @dankshin - welcome to Mayo Clinic Connect. Hoping members in this discussion like @jmb73 @cshrubb @sdsavage @cherrylistic @johnbishop @blange1977 and others will return to meet you, offer you support and answer any questions you may have.
That is a very recent diagnosis. How are you feeling about it? What symptoms led you to the doctor to figure out this new diagnosis?