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Hairy Cell Leukemia

Blood Cancers & Disorders | Last Active: Apr 10, 2023 | Replies (39)
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@agre

Not sure how I need to respond to this discussion...while having a routine blood workup last Nov 2021, I was diagnosed with HCL. Further blood work and bone marrow examination verified HCL variant.
I have an enlarged spleen, and many symptoms extreme fatigue, bruising and lower appetite. I was told that when symptoms get severe that I could either have the spleen removed or start chemo treatment. If I delay chemo does that compromise the spleen more?

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Replies to "Not sure how I need to respond to this discussion...while having a routine blood workup last..."
Colleen Young, Connect Director | @colleenyoung | Nov 20, 2022

Welcome @agre. You posted perfectly. I'm confident that members like @shing @dustedeagle @rllarocca @phyreguy79 will appreciate connecting with you.

Agre, you ask a good question about your spleen's health during the watch and wait period or if chemo would help. Have you asked your oncologist about the pros and cons of each treatment approach?

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vickismith | @vickismith | Feb 2, 2023

Hi
I have HCL-V and had a splenectomy in Oct 2022. I just finished 5 days in a row of Cladribine and started Ritux weekly for 8 weeks but after 3 tries my reaction to it became severe so waiting for new plan

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