Hi @jmb73, you'll notice that I moved your message to this long-standing and still active discussion about Empty Sella Syndrome in the Brain & Nervous System. Help me understand the investigations you are undergoing. Panhypopituitarism is suspected and your endocrinologist wants to verify if Empty Sella Syndrome is the potential cause?

Hi Joan! I did see a neurologist, but I was only diagnosed with the intracranial hypertension or pseudo tumor cerebri. I have a hx of graves disease, and a thyroid ablation with radioactive iodine when I was 19. The endocrine Dr. Seems to think my partial ess is due to the increased fluid pushing on the meneges and filling the cavity. Nothing to do with a birth defect. He is running labs to see if my hormones are off due to it. I still need to get the labs done. There isnt much out there on ESS. And while frustrating, the Hope is that maybe one day we will all have answers. There is a Facebook group if you have Facebook. They post questions and such, they tend to post a lot more there then here. You are the first post I have had since I made a comment on the site.