1. < Polymyalgia Rheumatica (PMR)

Hair loss from PMR or Steroids?

Posted by abbeyc @abbeyc, Feb 12, 2022

Hello, my PMR started mid December 2021 and I've been on steroids since early January (so about 6 weeks). 12.5mg for a few weeks, now 20mg. I'm noticing my hair is thinning and I'm nervous. Anyone else have this issue? I'm wondering if it's the PMR or the steroids causing the thinning and when it will stop. Anything that will help?

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ddmo | @ddmo | Nov 17, 2022
In reply to @suetex "I had dramatic hairloss due to an illness and the dermatologict suggested raising my biotin to..." + (show)
@suetex

I had dramatic hairloss due to an illness and the dermatologict suggested raising my biotin to 10,000 mcg. That is probably more than any of us would get ordinarily. But I did and I have stayed on it and have had no hair loss due to pred. Also it has helped my nails. (BTW: It is what we give to our horses when then have hoof problems, So it is the real deal, but it does take a while.)

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what brand of biotin? how long before u saw the "falling out" stopped or even slowed down

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suetex | @suetex | Nov 17, 2022

This was a response to being very ill so there was no stopping the falling out. The biotin (I believe it was Nature's Made or whatever my HEB grocery store sells) was to help it grow back faster. I have stayed on it and that is why, I think, that the pred hasn't been a problem. So best to get on it now.

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fazz | @fazz | Nov 17, 2022
In reply to @njtodctode "Do you know if the nutrafol made a difference or maybe the HRT...that's a question just..." + (show)
@njtodctode

Do you know if the nutrafol made a difference or maybe the HRT...that's a question just to be clear. I loved being on HRT but alas it messed up my thyroid so I had to stop. Now I am just really old. But losing my hair is so upsetting. Every time I see the Nutrafol or HERS commercial I think about it. The thing that stops me is all of the meds I am taking...a lot and about to add another. So I am asking if you know which has made life.better if you know and did it stop the loss or support growth. Ok thank you
Be well!

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I've been on HRT which includes a Armour Thyroid supplement to keep it in balance for many years before PMR. My doctor just made a few changes in my HRT to help offset the side effects of Prednisone. He is also the person who suggested Nutrafol. I'm sure the Nutrafol promoted hair growth. I can't say for sure if it stopped the shedding. It's another 4 capsules daily so it does add to the pile we're popping!

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njtodctode | @njtodctode | Nov 17, 2022
In reply to @fazz "I've been on HRT which includes a Armour Thyroid supplement to keep it in balance for..." + (show)
@fazz

I've been on HRT which includes a Armour Thyroid supplement to keep it in balance for many years before PMR. My doctor just made a few changes in my HRT to help offset the side effects of Prednisone. He is also the person who suggested Nutrafol. I'm sure the Nutrafol promoted hair growth. I can't say for sure if it stopped the shedding. It's another 4 capsules daily so it does add to the pile we're popping!

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Fazz thank you for the info. When I tried the HRT zip wish my gyn would thought of a way to keep me on it like your doc did. Oh well. That's the past. It's good to hear you have a good experience with Nutrafol. I think.I will check it out. I figure my face is huge, I have gained weight I did not need....how degrading to lose my hair! LOL.
Thanks again. Be well

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fazz | @fazz | Nov 17, 2022
In reply to @ddmo "i was thinking of trying nutrafol.... any side effects? i'm quite depressed as my hair thinning..." + (show)
@ddmo

i was thinking of trying nutrafol.... any side effects? i'm quite depressed as my hair thinning is going on for 2 months now.... thought of buying a halo extension... what was your price when buying nutrafol?
thanks
D

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Amazon... around $80+ for one month, however it last more than one month because I typically take it every other day.

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1 reply
ddmo | @ddmo | Nov 17, 2022
In reply to @fazz "Amazon... around $80+ for one month, however it last more than one month because I typically..." + (show)
@fazz

Amazon... around $80+ for one month, however it last more than one month because I typically take it every other day.

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interesting.... how long did it take for you to see results?
thank you for your response
Dd

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pst | @pst | Feb 12, 2023

Is anyone else experiencing hair loss from prednisone? So, with the shakiness, weight gain, pie face and now hair loss I feel and look like an out of control beach ball!
I’ve been told there are supplements to get hair going again. Wondering if any of you have used and had luck with such products; if so, what was helpful?
I know marketers would tell you you could marry the pope if you took their products and since this forum is a bit of a focus group I thought I’d ask here. Thanks

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3 replies
Mentor
John, Volunteer Mentor | @johnbishop | Feb 12, 2023
In reply to @pst "Is anyone else experiencing hair loss from prednisone? So, with the shakiness, weight gain, pie face..." + (show)
@pst

Is anyone else experiencing hair loss from prednisone? So, with the shakiness, weight gain, pie face and now hair loss I feel and look like an out of control beach ball!
I’ve been told there are supplements to get hair going again. Wondering if any of you have used and had luck with such products; if so, what was helpful?
I know marketers would tell you you could marry the pope if you took their products and since this forum is a bit of a focus group I thought I’d ask here. Thanks

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Hi @pst, You will notice that we moved your post to an existing discussion on the same topic so that you could connect with @rkndvm, @kspowell, @anniekirby and others who have posted about hair loss and steroids.
--- Hair loss from PMR or Steroids?: https://connect.mayoclinic.org/discussion/hair-loss-from-pmr-or-steroids/

If you click the link above it will take you to the beginning of the discussion where you can read what other members have shared.

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martiesowers | @martiesowers | Feb 13, 2023

I have been noticing a great deal of hair thinning but am off the methylprednisolone so I am attributing the hair loss to methotetexate. I had a similar issue almost a year ago and I ordered Viviscal. My hairdresser thought I would never get it back - but I DID. so I am ordering it again!

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