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@theresad2

Hi Stan,
Thanks for your response; it helps to share experiences. Maybe our discussion will prompt some others to let us know how they are doing. Like you, in hindsight it's obvious I had this long before I was actually diagnosed. My white count had been low for years. If I remember right, your white count is usually high? That is so strange to me to see the two extremes in the same disease. I feel good but I look forward to not having my spleen and my stomach fight it out for space when I eat. This last exam the doctor noted shotty lymphadenopathy in other areas, which was concerning to me. It's time for treatment. It's going to be hard not to visit my grandchildren, I usually go once a month. I am getting Rituxan at my local oncologist's center just 10 minutes from home for which I am grateful. This was arranged by my lymphoma specialist in UVA which is 3 hours away.

How did your appointments go? I hope they were able to confirm your labs are good. I can not really imagine having normal labs again; I'm sure it feels great! My doctor did advise me to wait until mid January to begin treatment because he expects there to be an uptick in flu and Covid with all the holiday traveling. Stay safe and enjoy your Thanksgiving. We do have so much to be grateful for.
Theresa

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Replies to "Hi Stan, Thanks for your response; it helps to share experiences. Maybe our discussion will prompt..."

Theresa. The appointments went well. Oncology was pleased there were no areas of concern and will see them again in the normal 6 months,
Hematology was pleased with the infusion results. All the blood tests were in normal/acceptable ranges. They will do a bone marrow biopsy in late December to actually see if or how much lymphoma is in the marrow and will establish a new baseline. The lymphoma will gradually come back and cause problems again someday and probably more treatments. Everyone is different and this could take anywhere from one to ten years. Anyway, all is good. I'll also see them again in 6 months.
I sure hope you infusions go well. Are you getting the covid antibody injection, Evusheld? I received it at the end of the first infusion day.
I hope you have a great Thanksgiving and Holiday Season.
Stan