← Return to Treatment for chronic Epstein-Barr virus (EBV)

Discussion

Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: Nov 26 9:26am | Replies (635)
Comment receiving replies
@nataliem

Thank you for asking, but sadly I am not better now. I do have some good days, but no consistency, and then many bad days. It is a heartbreaking way to live. I have been to the Cleveland Clinic three times. No help whatsoever. Doctors are not understanding and don’t give any hope or encouragement at all. Over three years and counting….

Jump to this post

Replies to "Thank you for asking, but sadly I am not better now. I do have some good..."
chistiania | @chistiania | Nov 17, 2022

I am so sorry to hear that. I had hoped you had gotten better. I agree. I think it is a very, very difficult way to live. But if you have had CFS for ''only'' three years and you take it easy, and try to avoid all stress and worries (easily said than done) you might get better. I have had it since the year 2000 and when I think of all the interests and passions I used to have and the way my life has turned out ... yes, it is heartbreaking. It is so sad that you have been to the Cleveland Clinic and that even there you could get no help. It truly is discouraging. I guess if we had a broken arm, or leg, doctors, and people, in general, would understand. In the course of these years, I have unfortunately found out that CFS makes us invisible.

VIEW AND REPLY