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Essential thrombocytosis with MPL mutation

Blood Cancers & Disorders | Last Active: Sep 11, 2023 | Replies (32)

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@pumpkin1

Hi, Flynn. I too understand your hesitancy to take the Hydrea. I am 81. I have ET w/JAK2 and platelet count is in the low 600s. Right now I only take baby aspirin…that is my choice, not the hematologist’s. I will be interested to see how you fare with the Hydrea. Good luck with the bone biopsy. I have read/heard that the doc can give you something that will ease the experience. Best wishes,

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Replies to "Hi, Flynn. I too understand your hesitancy to take the Hydrea. I am 81. I have..."

Hi Pumpkin1. Only been taking hydroxyurea for 10 days now, but no unusual side effects yet. I already have peripheral neuropathy in my feet but have had it for years. And it doesn’t hurt or sting I also don’t feel weak or fatigued. At least no more than usual. Biopsy 12/1. I’ll keep you informed! Don’t want to jinx it but feeling good so far. Hope you are as wel!