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New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

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@suzcape

I have a cardiologist after heart attack - 2 stents placed. No issues w/heart now. I also have a Pulmonologist, I have PF (pulmonary fibrosis) since Nov 2020. Your activity level and stats sound like mine. Finding great doctors like mine are hard to find but they are out there. Listen to friends for referrals and real experiences. Pray you get some answers soon.

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Replies to "I have a cardiologist after heart attack - 2 stents placed. No issues w/heart now. I..."

Thank you for your comment. I made an error in my last post. It wasnt an electrocardiogram I had, it was an echo..and was great. Anyway, unfortunately where I live we have huge waiting lists for specialists. I dont get a ct scan till Dec. or a pulmonologist visit until January despite my insistence that 4 months is ridiculous. They know my history and what's happened with my trip to another city on life support after being septic.
That being said, in the last 2 days I feel I've turned a corner! My 02 is holding steady at 98 and 99% and I've been walking more and doing stationary light exercises led by a pulmonologist on a video. My heart rate is staying between 97 and 110 when I'm doing things and I feel better. Maybe this is just a brief break in the clouds, or maybe my patience, rest, going slow and nutritious eating are healing me. The mucous is clear and theres less of it, cough just in morning briefly. The doctor who said it was a very severe pneumonia said healing could take 6 months. Maybe it was pneumonia, I dont know and wont have any more answers until the specialists can see me. The specialist who did a bronchoscopy said nothing showed up there. It's one day at a time and trying to contain my anxiety till further tests 🙂