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Inclusion Body Myositis: I'd like to talk with others

Autoimmune Diseases | Last Active: Oct 20, 2023 | Replies (97)
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@jmuller104

A funny thing happened on the way to a diagnosis… misdiagnosed with ALS. Then I went to the University of Kansas neuromuscular center - fantastic people!

They said; “you don’t have ALS”. Now they work to help me manage my sIBM. I’m so grateful that I started a foundation: American Neuromuscular Disease Foundation with a separate nonprofit 501c3 http://www.GettingUp.org

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rsfcowgirl | @rsfcowgirl | Nov 16, 2022

CONGRATULATIONS.
What an amazing moment of freedom to learn you did not have a serious disease you were told you had.
It's fantastic for you to start your non profit to help others. No doubt your new life will be fruitful for you and many others
I want to hear about your ongoing journey.
High five!!!!!

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