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Sarcoidosis: What treatments have you had with few side effects?
Lung Health | Last Active: Jun 25, 2023 | Replies (61)Comment receiving replies
Hi @yturner,
I moved this discussion to the Lung Health group as I think you will get more responses here. I found this published study about the frequency of headaches/migraines in sarcoidosis patients: http://journals.sagepub.com/doi/pdf/10.1177/0333102418768037
Unfortunately, fatigue is a common manifestation of sarcoidosis. Recently, the use of neurostimulants has shown promising results in treating chronic fatigue; here's more information for you: http://journals.sagepub.com/doi/full/10.1177/1479972316661926
Is this something you have considered, @yturner?
Replies to "Hi @yturner, I moved this discussion to the Lung Health group as I think you will..."
@yturner , My cousin with Sarcoidosis takes ridalin to boost her energy. I think she may also have ADD and it helps with that as well. I have her same dr. He put me on adderall. I do have ADD, but it also gives my muscles the strength to move my diaphragm. I have a stiff and flattened diaphragm due to my multi-lung disease situation. I take only .05 mg. and that seems to help with my breathing.
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Yes I have been on several different meds to address my fatigue but nothing has worked. My doctor is currently looking into a type of infusion. I was recently told my sarcoidosis is active and has spread to my skin. I thought I had bruises all over my legs and went to the doctor. I was told last week that it is sarcoid. My Dermatologist has suggested Himira. Has anyone ever used this med?