I am totally with you! I don't understand why a mastectomy would not have been recommended for you back in 2004 but I was told today (first appt with surgeon) that she would recommend mastectomy only if genetic testing pointed in that direction. Clean margins are not easy with lobular and if clean margins were not found in the pathology then she would go back in ???
I appreciate your candor and will circle back after my second opinion on Thursday. I know they keep saying the risk is not "much" greater by having only lumpectomy but if clean margins are not found then I would hope they would agree to a mastectomy. Radiation seems a given with lobular even if mastectomy??? Thanks again for weighing in xoxoxo