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Thank you gillysmom for that extra info. I dont know a lot about either subject. You seem very knowledgeable. Do my symptoms sound like Interstitial lung to you? Right now, resting heart rate between 60 and 70. In the morning on movement 125- 145. In evening it's best and I can do small things and its 110-115. BP was high before this whole incident started. Now it's normal. Resting sats 96/97. Sats on moving, 90-93. No dizziness, fainting or lightheartedness. No blue lips or nail beds. Sats go back to normal quickly after returning to rest. An electrocardiogram was done and is normal. Bronchoscopy showed nothing. I'm losing weight (I need it) because I'm eating healthy. Yet some days my 02 sats stay at 93 while moving and heart rate stays down. That gives me hope and relief. Next day it could be bad again. I already have anxiety disorder so my anxiety is through the roof to the point I havent left my home since getting home from hospital Oct.2 This is no life.
Replies to "Thank you gillysmom for that extra info. I dont know a lot about either subject. You..."
I have a cardiologist after heart attack - 2 stents placed. No issues w/heart now. I also have a Pulmonologist, I have PF (pulmonary fibrosis) since Nov 2020. Your activity level and stats sound like mine. Finding great doctors like mine are hard to find but they are out there. Listen to friends for referrals and real experiences. Pray you get some answers soon.
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Idon't think an electrocardiogram is sensitive enough to give you definitive answers about your heart. Get a cardio consult and check out the steps I suggested in my last post. Lungs can restore function, but not when your body cannot fight off the lung infection. Docs sometimes withdraw antibiotic treatment before your body can restore its own healing through your immune system. Your immune system may be the problem. A good infectious disease or immunologist specialist plus cardiologist, and a few tests to help idenitify the causes of your illness are essential. YOU need to figure out the reasons for your continued life challenging infections. When this same problem happened to me, I had to advocate for my immune spport treatments, or, for sure, I would likely have died years ago. I feel for your anxiety, because I believe you subtly realize something is wrong, and you are not getting better. Please try to toughen up and fight for your survival. There are hundreds of us who want you to get better. Try meditation and tough self love, and some new specialist consults.