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Cirrhosis of the Liver: What to expect when waiting for a transplant?
Transplants | Last Active: Aug 16, 2023 | Replies (104)Comment receiving replies
I am sorry about your health. Isuffered overnight a collapse (vomiting blood ) that in the middle of COVID put me in the ER. Very similar to ur problem. I went immediately to the best local hospital who detected and knew my problem. Medicine kept me alive but I was immediately included in the liver recipient list. Was called 4 times but only the last qualified me to received a transplant. 6 hrs operation and so far the liver is improving with my organs -no rejection- the recovery has been hard for me, 5 mo. And going once a week for blood ck, that was easy but I developed strong tremors that force me back in ER where I am now… if you have strong wish to live, do 2 thing, get a great doctor to give you medicine to “keep u alive n out of complications, 2 ask to be included in the National registration of liver recipients…. I truly hope u have a good insurance because gets expensive. Hugs going your way. Namaste
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Who do you ask to be included in the National registration of liver recipients?
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@guillermos - You have certainly been on an uphill journey. I am sorry about your current ER visit, I hope that when you receive this reply that your doctors are working to resolve your strong tremors. At 5 months, it is normal protocol to have weekly labs. Are you taking Tacrolimus/Prograf ?
I am 13 years post transplant (liver and kidney). I have made many runs to my local ER, especially during the first few years.
When you get home and have resolved the tremors, will you send an update?
Congratulations on your recent Liver Transplant!