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Bilateral breast cancer with lymph nodes removed/how are you treated?
I have had bilateral breast cancer with lymph nodes removed on both sides. I am scared to death of getting lymphedema. Has anyone found a treatment center that caters to us. I have repeatedly asked for IVs, BPs and blood draws to be done in other parts of my body and just get blank stares and they go ahead and use an arm or hand. I am so discouraged that no one seems to be interested in helping me not get lymphedema. Why is this not routinely part of my treatment....getting this stuff done in other body parts? Cancer centers that do not offer this are just oxymorons. Do they really care about the best care for people like me. So far, it does not seem so. I would like to hear how many people are being treated properly and how many, like me, are just a number and $$$$$$$.
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I had a no-lateral mastectomy 4 years ago. Breast cancer in 1 breast and 3 lymnodes. All nodes on 1 side removed. I get myofascial massages on scars and arm area. It has really seemed to help. I do have a sleeve and if I feel any swelling I put it on. I think with everything else we seem to worry. Hopefully if you get a sleeve and be aware of over use of arm you won’t have problems
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1 ReactionI had breast cancer rt breast and lymnodes removed rt side 2004 had Radation then they removed breast built a new one it died numerous surgery up until 2009. Then I just had hand surgery last Friday 11/04/2022 for Arthroplasty of Carpometacarpal joint with implant,and trigger finger release.
Had 2 nerve blocks before surgery and right after did not take for maybe and hour. I’m in pain is this normal for pain pills and Motrin not helping very long.? What’s up should I have not had this done please help?
Do you have lymphedema?
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1 ReactionDear sandyjr @sandyjr I had right mastectomy and 21 out of 25 lymph nodes removed from breast and armpit area, last year. I did chemo, radiation and immuno therapy which still having. In the first months I had some lymphedema and did drainage massage in an expert. It went well with the massage and the hand didn't swell more but the opposite. I also had the sleeve done for heavy household chores and for travelling. The expert also showed me a few moves and massage I can do for myself so I won't swell. I'm pretty good now and have no lymphedema. Fortunately I have the other arm for injections, pressure meassurement and everything else needed. But one time I was in the hospital they meassured my blood pressure on the foot and another time I had to do blood exams and it was cold and couldn't find a good vein they took blood sample from my foot. Don't get discouraged and try to demand it more. After all it's your health and comfort more important that other's convenience!
Yes I have lymphedema- starting PT tomorrow.
@lbrabo, you may be interested in joining this discussion:
- Aromatase Inhibitors & carpal tunnel/triggers finger https://connect.mayoclinic.org/discussion/aromatase-inhibitors-carpal-tunnel-triggers-finger/